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First, nobody has recently done anything. I do get DM's all the time about BS cures, supplements and ways to reverse IDDM. So no-one needs to be ready to kick an ass for me This just speaks to me on so many levels. I have Lupus, Fibro, Endo, PCOS, T1D, IBD, Raynauds, RA, anxiety & depression...... There are some who are bed bound, others who work hard labor jobs. I meet in the middle. But I show me the way I am comfortable with. When I was first diagnosed I had such a wealth of doubt and opinions sent my way. Being sick was too much for so many. Some questioned the legitimacy of what I had. (I had 2nd and 3rd opinions personally but still) Someone somewhere had one of my diagnoses and was completely fine, not me. So now I don't give a shit anymore about the opinions of someone who isn't sick. I am me. Disease processes are part of me. Someone's grandmas neighbor's Lupus isn't mine. Someone's cousin's friends diabetes isn't mine. I am am open to so many treatments. (Trust me when I say I have tried a ton) Offer me what you have done for your Lupus, Fibro, PCOS, T1D and we can compare. Just don't doubt my word. That is the quickest way to get a bye from me. I live with guilt for having as many sick days as I do now. #shameonyou #peoplecanbesocruel #chronicpain #chronicillness #lupus #autoimmune #iamstillme #brave #anxiety #pcos #endometriosis #raynauds #fibromyalgia #guilt

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My face kills! My eczema is on fire, I hate the swelling, the scratching, the burning, soreness and stiffness of my faces from the dry flakey patches. It’s also aggravated by dust which is everywhere. I did that thing that i’m sure all eczema sufferers do. Getting in the shower with scalding water, it feels so good but is so bad for eczema. It just seems to be back to being inflamed all the time, it’s such a horrible feeling. . . . eczema#eczemawarrior #eczemasucks #eczemarelief #chronicillness #illustration #beautystandards #illustratorsoninstagram #mentalhealthawareness #selfesteem #selfcare #instahealth #doodle #wellbeing #livingwitheczema #vulnerability #lbloggers #chronicillness #anxietysupport #effyourbeautystandards #depression #lbloggersuk #recoveryquotes #eczemaproblems #bbloggers #selfconfidence #empowerment #inmyskin

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Yesterday at the BBC! I was on the Jeremy Vine show ( hosted by @amolrajan yesterday!) talking about disability issues in the UK with Frances Ryan. If you’d like to listen the link is on bbc Radio 2 iplayer, and we’re on at 1hr and 8 minutes in. I’m totally exhausted and floppy today, but it was worth it for a successful radio interview and good afternoon out in London with the bf afterwards featuring sales shopping and matcha lattes #disability #disabledandcute #spoonie #wheelchair #wheelchairuser #wheelchairfashion #ehlersdanlossyndrome #ehlersdanlos #eds #pots #dysautonomia #chronicillness #chronicpain #chronicfatigue #london #bbc #broadcastinghouse #w1a #pinkleggings

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Yesterday’s post showed you how I was #inspiredbynature with flowers and I began a new #crochetproject . . When I was a child we had a front yard with garden beds all around the edges with some brightly coloured flowers. I remember zinnias, dahlias, gerbras, daisies and asters. My baby sister liked to pull the petals off them to eat. The front garden was for playing with toys, balls, hula-hoops and cats, dressing up, spinning and magical time investigating flowers, leaves, bugs and butterflies with my family. . I always thought the asters had a hole in the middle, but really they just had a dark centre. My crochet flower isn’t a true aster, it’s a child’s memory of one. This pattern is me trying to crochet a bit of that remembered childhood magic and love of colour, flowers and garden. You can use one flower as a motif, join them. I’m going to make a scarf and call it Asters In My Garden. . When the #crochetpattern is ready, I will share it to say thank you for all your support. . I used Patons Blend Cotton (DK weight) from the kind and talented Robyn @yummyyarnandco in Bright Red, Orange, Yellow, Flamingo, Pink and White. Any fave colour combo could work. . #crochet #yarnbomb #crocheting #yarn #knitting #crochetconcupiscence #craftastherapy #chronicillness #crochetersofinstagram #crochetgirlgang #crochetlove #yarnaddict #colouraddict #spreadkindness #threadsoffriendship #craftcolourmyday #createmakeshare #creativehappylife #makersgonnamake #createeveryday #handmadewithlove #craftsposure #celebratinghandmade #stitchandhustle

You gotta do what you gotta do🤷‍️ Even though my body is still hindered by a needle in my chest wall that is delivering strong antibiotics, I still gotta work out. Here my IV meds are infusing as I work on my core! I go to the gym to improve my lung function so that I can lead a longer, healthier life. Why do you hit the gym? Tell me below!!! 🤙 . . . . . . #instafit #progress #gymlife #cysticfibrosis #cardio #aesthetics #fitnessaddict #fitspiration #getfit #noexcuses #fitnessmodel #65roses #fitnessmotivation #gymrat #dedication #physique #spoonie #fitlife #fitnessjourney #cyster #made_in_mtl #montrealmoments #follow4follow #butyoudontlooksick #montrealminute #chronicillness #iphoneonly #cfer #iphoneography #fibrosekystique

Got through my 48 hr holter monitor. It felt great to shower again but my skin was really reactive to having had the electrodes on so that was irritating. Oh you know.. even though they’re for “sensitive skin” and all. Good news is I powered through without antihistamines! Three more days to go! 🤞 #lifeofnessleigh